This week we had 2 meetings about our next steps with the
Family Needs Assessment for the children under 18. Our first one was discussing how to organize
the focus groups and the approach that we should use when addressing the children. We sorted out things like when to hold the focus groups, how many children will be in each group, what age ranges should we use, who will be participating, how will we explain the focus groups to the patients, how should we document what is being said and what form of consent do we need. Since this took quite a while, we held another meeting the following day with our pyschosocial counselors, Laetty and Edmond, to translate the questions and an introduction paragraph for asking patients to participate. Lizzy was an invaluable resource by typing out all the meeting minutes and giving her input. Also this week I was able to skype with Dr. Cohen, the founder of this clinic, and get her input on our progress thus far and next steps for the future.
The agenda for the first meeting is listed below:
Here are examples of the questions that we would like to ask children (ages 12-21) in the focus groups with the translations following:
- Status Disclosure Guhishura uko uhagaze
- How many people know about your HIV status? Ni abantu bangahe bazi uko uhagaze?
- Who have you told? Ni bande wamenyesheje?
- Have they told anyone? Explain. Hari uwo babibwiye? Sobanura.
- When? Why did they reveal this to them? Ni ryari? Ni mpamvu ki yatumye babibamenyesha?
- Who have you not told about your status? Why not? Ni bande utabwiye uko uhagaze? Ni mpamvu yihe?
- Describe a time when you were at risk for someone discovering your HIV status. Sobanura igihe byari bigiye kuba ko umuntu amenya/avumbura uko uhagaze.
- How did the situation end? Ese byarangiye gute?
- What would make it easier for you to reveal your status?
- In boarding school? Ku ishuli wiga urarayo?
- In your home? Mu rugo?
- Boarding School Kubaba ku ishuli/ku biga barara
- How do you go about hiding your HIV status (keeping it private)? Ese ubigenza ute kugirango uhishe uko uhagaze.
- In boarding school? Ku ishuli wiga urarayo?
- In your home? Mu rugo?
- How do you experience stigma from HIV? Ese witwara gute mu guhabwa akato
- Ask for details, stories. Baza asobanure mu magambo arambuye
- When have you missed ARV doses? Why? Ni ryari utafashe imiti? Ku yihe mpamvu?
- What are solutions for avoiding this? Ni ibiki byafasha mu kwirinda iki kibazo?
- How does the stigma that you experience at boarding school affect your ARV adherence?
- How could this be prevented?
- Self-Confidence Kwigirira ikizere
- Do you feel appreciated at school? At home? Wumva ushimwa ku ishuli? No mu rugo?
- Are your strengths applauded/rewarded? Ese imbaraga zawe ubona zishimwa?
- How are you disciplined? Ese uhanwa ute?
- Do you feel that it is deserved? Wumva guhanwa biba bikenewe?
- When do you feel confident in yourself?
- How does Self-confidence affect your ARV adherence?
- Miscellaneous
- font-family: "arial" , "helvetica" , sans-serif; text-indent: -0.25in;">How can the people in the clinic improve your medication adherence? Ni gute abaganga bagufasha mu gufata imiti neza?
In other news, Germany lost in the semifinals of the Euro Cup. So that was sad.
